Medical Info
Home Medical Info Jeremy Spoke Dad Spoke Interests Photo Album Guest Book Donations

 

Medical history

Jeremy was diagnosed with neuroblastoma cancer in September 1999. This is a nervous system related cancer. Jeremy's started in his spine. The disease is classed into four stages, Jeremy's was a late diagnoses--stage four--which is typical for this cancer. Prior to beginning treatment, the doctor described his tumor as "about the size of a football" to his father. Because of the advanced stage of the disease, the cancer had spread to Jeremy's ribs, lungs, hips, arms, and skull.

Jeremy began chemotherapy, once a week for six months. Jeremy responded well and the tumor shrunk. In May of 2000 surgeons removed the tumor. The surgery went well and subsequent bone scans showed good results.

Currently, Jeremy is in full remission.
11/17/00

Jeremy Update,

Sorry to leave everyone hanging for so long. Jeremy is doing so well I find myself not wanting to think about the past year at all. He looks so good and he's so full of life. His hair is growing back and he had his first trim the other day. Every time I look at him I'm overwhelmed with joy.

The week of the 12th was Austin's birthday, Jeremy's younger brother. We are going out to see the new Rug Rats movie then home for cake and gifts. This coming Tuesday we’re taking a trip to Placerville to visit Grandma and Grandpa Salmen for Thanksgiving. Boy, do we have a lot to be thankful for! We'll be gone for five days and Jeremy and his brothers are really excited about going (me too). Jeremy has been receiving home schooling the past few months and his teacher says he's doing very well. He shows a lot of interest in music. For Christmas I got him a new Flying Vee electric guitar. 

Jeremy had an MRI the other day and the results show no signs of cancer in his stomach or pelvis area. Another victory!

I want to personally thank every single person out there that has been praying and thinking about Jeremy throughout the past year. It helped take a lot of the stress out of my life just knowing there were so many people out there supporting us. I would come home from the hospital sometimes and go on Jeremyspoke.org, and it was so comforting to see and read all the letters that came in.  Thanks again.

I would also ask that we continue to keep Jeremy in our prayers. It's a long road ahead and we can use all the help we can get.

One last thing before I sign off. I want to thank God for touching my son with his healing hand.

- Don
9/27/00 JEREMY IS CANCER FREE!!!!!!!!!
JEREMY IS CANCER FREE!!!!!!!!!
JEREMY IS CANCER FREE!!!!!!!!!

The results of the bone marrow biopsy are in and Jeremy is officially in remission! In this miniscule slice of the universe, the future is triumphant, once again the road unknown stretches before us beyond the horizon. Hallelujah.

9/22/00 Jeremy had a bone marrow biopsy. This test is to determine if Jeremy is officially in remission.
8/29/00 From Jeremy's dad:

Jeremy is doing really good right now. He is getting stronger every day and his counts continue to rise toward more normal levels. He's still on a low bacteria diet and wishes he could eat regular foods but he's good about telling me ( " I can't have that Dad, remember?" )

Note: We should have new photos on the web site the first week of September.

8/14/00 From Jeremy's dad:

Jeremy is doing good. He is weak but getting stronger every day. They took him off the IV he was on at night so that's good. Its sure nice to have him home.

7/28/00 From Jeremy's dad Don:

GREAT NEWS!

Jeremy is scheduled to come HOME from the hospital Monday the 31st. As always Jeremy has responded extremely well to his treatments and just refuses to be sick any longer than he has to be. We were all shocked at how soon he's getting out.

He will continue to be on an IV for 12 hours a night at home, until he starts to eat solid foods again. He's been craving pizza and tuna fish, so I don't think it will be long. 

As soon as Jeremy gets his strength back we're going to have a rocket party for him with real rockets and lots of cold (Mountain Dude) soda.

Thanks for the prayers everyone,

Don

7/24/00 From Jeremy's dad Don:

"Great news, Jeremy is doing a lot better. His stem cells have started to grow and his blood counts are up. His counts were at 700 when I saw him last night. When they reach 1000 he will no longer have to take the gut sterilizers four times a day he's been taking. I can only imagine how awful these meds. must taste. When it's time to take them Jeremy puts up a big fight every time. It takes two nurses to hold him down and another to force open his mouth to get the medication down. 

Last night I asked Jeremy 'Why do you always fight them Jeremy. Don't you hate it when they hold you down and force you?'

He said 'I hate taking the medicine more!' 

His spirits are low at times for the first time since this whole thing started. Everyone has their limits and Jeremy is reaching his. He wants to go home and is starting to tell me it's not fair! The first time I've heard those words in almost a year of treatments. 

Jeremy still continues to throw up a lot. I've been told this is normal. Some people even continue to throw up after they've been released to go home. The stomach has no lining and it takes a long time to heal its self.

Over all things look great."

Please keep the prayers and thoughts and messages up, this is a good and hopeful sign.

7/14/00 Day /15 / ( BMT )

I spoke with Jeremy last night and he was in great spirits! He asked me when I was going to bring the tang that I promised him. (Tang: orange flavored drink mix the astronauts use.)  I will bring him tang when I see him tomorrow night. Jeremy has been incredibly strong these last few weeks. The effects of the chemotherapy and radiation he received are taking effect. He has sores in his mouth that prevent him from eating anything. They are extremely painful yet Jeremy refuses to complain. He also has large dark patches on his skin that look like bruises. I didn't know what these were until his skin started to peel. They are burns from the radiation. Again, no complaining from Jeremy.

7/3/2000 Jeremy is suffering great discomfort. He has internal and external sores and is not eating well.
7/1/2000 Jeremy had a bone marrow transplant. He will be in the hospital for at least the next three months.